Guestbook
Thanks for visiting my guestbook. Feel free to leave a comment for me and my mommy will be sure to read them to me. I love bedtime stories, especially ones that are encouraging. Thank you for visiting!
Donate Now to Save Jax!
Please help me get the bone marrow transplant I so desperately need.
Mailed donations: Checks can be made out to “The Jackson Baldwin Charitable Trust” and mailed to:
David Valik
Route 8, Box 29,
Hoffmeister, New York 13353
Buy a ‘Save Jax’ T-shirt!
Show your support, the new Save Jax T-shirts are now available!
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Recent Mommy Updates:
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At the hospital
All wrapped up.
These are my blisters.
Waiting for mommy to pop my blisters.
Glimpse of my back.
My poor foot.
Underneath my arm.
Aren't I a cutie-pie?
My recent surgery. My new BARD button.
Just me, Jax. Can you help?
Save Jax! 
Jax,
Grandpa (David Valik Sr.) and I (Cindy Valik) were so happy to see you when you came home! You have grown so much. We couldnt believe how much different your skin was too, wow. We can not wait to see you when you can stay home for good.
love,
Grandpa and MeMa
October 29, 2012 at 3:23 pm
Hi Baby Jax,
I fell in love with your sweet face the first time I saw it. Can’t remember if I saw you on the local news first or in the daily newspaper. You reminded me so much my little nephew at that age. I pray for you everyday and pray you get the miracle you are so deserving of. Continue to be strong, little man. So many people are praying for you and love you.
June 19, 2012 at 8:48 pm
Daddy loves u jackson stay strong u will be back home in no time your brother and sisters see waiting for u
May 18, 2012 at 4:56 pm
Hi Jax and family i am a stepmum to 3 children with EB so i just wanted to say hi and be strong xx
May 1, 2012 at 6:42 pm
Hey Jax! you’re such an adorable baby!! Keep fighting kiddo. 🙂
April 18, 2012 at 5:47 pm
Hi Jax, I say a prayer every night for you and your mommy. My son CJ was born 6 days after you. He actually looks a lot like you, with the big beautiful eyes (and the baldy head 🙂 ). That is what caught my eye the first time you were on the news. At first glance I could of sworn it was CJ. I hope you get better very soon and would love for you and CJ to one day get together for a playdate.
Love from Ballston Lake, NY, Sharon
April 4, 2012 at 9:32 pm
Jax, you and your mom are so brave. God bless you and your family and friends. I am praying for you every day.
March 30, 2012 at 8:57 pm
If im a match for jackson, i’d more than blessed to donate bowmarrow. I’ll pray and never give up hope for him.
March 23, 2012 at 4:14 am
Dear Jax,
You are an amazingly strong little man. Your mother is even stronger, I want you to know that there are SO many people who are willing to help you pull through we are all trying to do what we can to help you!!
March 21, 2012 at 6:25 pm
God is with you sweetheart…..He hears our prayers! Your Mommy sure is a tough beautiful angel. Always saying prayers for you & your family!!! Helping with whatever I can!!!
March 19, 2012 at 11:47 pm
Dear Jackson
MY name is Alex and I am 9 months old. My mummy has told me all about you and how brave you are. I live a long way away in England but when I go to bed mummy tells me about you and all xbout the battle you are fighting and we pray for you, and all the other people suffering from eb. When I grow up I am going to be a scientist and find a cure but hopefully your bmt will be a cure and we can meet up and play together.
Love Alex
March 17, 2012 at 6:53 pm
Hi Jax, you are such a strong little boy and so adorable. I’m so glad you will be able to get the help that you need. You will remain in my thoughts and prayers. God bless your family and all those that reached out to help you. I cannot see how anyone can resist your beautiful little face. Hang in there mommy, you’re an angel.
March 16, 2012 at 11:39 pm
I am so happy you have been approved. I am raising money to help and as soon as I get it collected will send it thru pay pal. Praying for you and the family
March 16, 2012 at 10:01 pm
AMEN!!!!! There is good out there. So happy for this little boy. God did good.
March 16, 2012 at 8:44 pm
So glad to hear this great news!!!!! Yay for Jax!!!!!!! Stay strong baby boy!!
March 16, 2012 at 8:32 pm
Hi Honey,
We’ve been working really hard to get you to MN and we’re not going to stop there! So give your mom a big hug and kiss from me and get ready to pack your suitcases!
March 16, 2012 at 3:26 pm
hey Jax!
you are a such a cutie! your story has made its way alll the way to Cyprus, Europe! And I will make sure to keep spreading the word! We will all work to get you the transplant you need! Love and prayers, from across the atlantic!
Christiana
March 16, 2012 at 4:01 am
Hi little Man. You are so very brave and strong.My thoughts and prayers are with you. Stay strong.You WILL get through this. God bless you and your wonderful family.
March 16, 2012 at 12:40 am
I saw your story on channel 6 tonight. I live in Cobleskill, NY. I am a nurse and I have never heard of this condition. You will be in my prayers every day. God bless you, sweetie and may God give your mommy the peace and strength that she needs.
March 16, 2012 at 12:24 am
I found your link through FB. I am a single mom of a special needs child so I don’t have a whole lot extra but I donated $5. I wish I could donate so much more but I understand in these situations ANYTHING helps! Thoughts and prayers for your family and sweet baby boy.
March 15, 2012 at 7:34 pm
Hi Jax, I learned about your condition from Facebook, and just wanted to say I am praying for you and your family. Your such a beautiful little boy and by the pictures it looks like you have an amazing personality even through your condition. I will be praying and wishing the best for you little man.
March 15, 2012 at 7:02 pm
Dear Jax,
I just learned about you on facebook and am very saddened and concerned about the pain and suffering you are dealing with. I live in Virginia now but I am from Fort Plain, NY. You are in my prayers for complete healing and that you would get all the care and medical procedures you need. God bless you and your family.
March 15, 2012 at 3:41 pm
Jackson! You are such a cute little boy! Keep staying strong and fighting little man, you have done an amazing job! You have a very special mommy, for everything she has done for you, and continues to do to make sure you have the best care possible! Of course, you deserve that! Praying for you to get your transplant soon! And Jess, what you have done for him is amazing, you are an awesome mother keep up the good work! The process is long but I’m sure the outcome will be well worth it! Here’s to the both of you & your supportive family!
March 15, 2012 at 1:36 am
Our sweet little Jax, Uncle Dave and Aunt Milly pray for you always, we know that you are a tough little man and can do it. We are always sending special thoughts and prayers up for you and Mommy. You tell Mommy be as strong as she has been, she is a great Mommy Jax. You are on your way to get whats needed to help you little man, you hang on.
Lots of love and hugs and kisses XXXXXOOOOOO
March 15, 2012 at 12:32 am
Jax,
your smile tells it all. We pray for you every day, keep fighting. We will keep searching for help.
March 14, 2012 at 7:31 pm
Hi Jax!
I just read your story and am praying for you. I wrote to all of the representatives and will be sharing your story on Facebook and babycenter.com. You are a gorgeous, amazing little boy. Do not give up! There are so many rooting for you.
March 14, 2012 at 2:16 am
Daddy loves u jax
March 13, 2012 at 9:57 pm
Hi Jax we just read your story we live in Fort Plain and my daughter Alex who is 7 years old beat Leukemia 2 years ago. We are praying for you sweet baby and hope that you can receive the treatment you need to feel better. Love, Kalley Lee and family http://www.caringbridge.org/visit/alexandrahandy
March 13, 2012 at 8:50 pm
Hi! I am helping fight for jax, he is so cute and i have a 9 month old baby boy and i know how much i love him and i know how much you must love jax. I am spreading awareness on facebook and promise to write to each assemblyman to get attention to getting jax treatment as soon as possible. I feel for you in such a deep way and please keep us updated on how he is doing!
March 13, 2012 at 7:20 pm
Omg! You’re such a gorgeous little boy. I would donate to you if I could. I will keep you in my prayers and spread the word about you. You will over come this, you’re too cute not to!
March 13, 2012 at 6:39 pm
Hi Jackson,
You or your family do not know me, but I am from a magical place called the Internet (think cats). My best goes out to you and my family’s thoughts are with you. After writing to the representatives listed i received this from Congressman Paul Tonko:
March 13, 2012
Dear Mr. —-,
I am in receipt of your communication to my office regarding Jackson Baldwin of Johnstown, New York.
Jessica was recently in contact with me. Please be assured that she has received assistance.
Thank you for sharing your concern about your friend.
Sincerely,
Paul D. Tonko
MEMBER OF CONGRESS
March 13, 2012 at 5:56 pm
Hi Jax,
I just found out about you on facebook! Your mommy is doing a great job getting the word out about you. I have an 11-month-old baby boy, so I know how much your mommy loves you. I’m trying to help by emailing your lawmakers and making a donation. Stay strong. I hope that you receive the bone marrow transplant that you need very soon. I will keep you and your family in my prayers.
Janet from Buffalo, NY
March 13, 2012 at 5:52 pm
Just sent emails to the officials listed. But beyond that, I am praying for you and your Mommy. My grandson was born with a milder version of EB and just a week ago our neighbor had a baby girl with a very severe case. We will work to raise awareness and recruit as many people as possible to pray for help and healing. Love from Tacoma, WA.
March 13, 2012 at 2:47 pm
Rebecca,
I’m Jackson’s great-grandmother (one of three). I’m so sorry to hear that you have so much EB around you. I’m including them in my prayers. Maybe with more awareness, we will see more research which will lead to a cure.
Thank you
Gail
March 15, 2012 at 1:06 pm
Sweet Little Jax, we will fight, fight, fight to get you to Minnesota. We love you and will NEVER give up.
March 13, 2012 at 12:56 pm
Baby Jackson, We all love you so much and we WILL get you to Minnesota !!!
Love, Grampa Valik 🙂
March 13, 2012 at 12:47 pm
Jax, don’t you worry…we are fighting the good fight. We will do whatever we can to get you to Minnesota!! We love you and we will not give up!
March 13, 2012 at 4:15 am
Hi, Jax! You don’t know me, but I’m doing everything I can to help you! I can only donate a little, but hopefully by sharing your video more people will help, too! Stay strong little man!
Jamie
March 13, 2012 at 3:45 am
I am standing behind you sweet boy! I will keep you in my prayers! May god give you strength and comfort as well as your family. May he wrap his arms around you. He has big plans for you little man I know it! Sit tight we will fight for you! God Bless you!
March 13, 2012 at 2:45 am
Hi Jax, Your family, your friends, and all those who love you are behind you Jax. Stay strong. We are all working hard for you. We love you.
Love,
Your Great Grandmom
March 12, 2012 at 11:54 pm
Hi Jax! We are fighting hard for you to get to University of Minnesota, so just sit tight! xoxo
March 12, 2012 at 3:50 am